Monday, June 22, 2015

Libby's Hobbit feet

Tomorrow is Libby's Achille's Release surgery.   She has been nervous, scared, and almost excited.   Every new procedure is scary.   She shows how worried she is about something by refusing to help with getting dressed, by refusing to eat, by refusing to potty, by generally being a butt head.  Think of the limp noodle position that protestors used during the 60's.  What makes this a little bit harder is two fold: she isn't swallowing well so we are on modified soft and thickened food/drink diet and the kid has to potty.  You can smile now as we have practiced who lifts and who wipes.    
(We will be alternating those jobs using rock, paper, scissors...) 
 She knows we have been lifting and working out more to get ready for the dead lifting we will have to do.  At first she won't be able to stand on her feet at all, which means that when we transfer from wheelchair to couch, wheelchair to toilet, wheelchair to car, wheelchair to bed- we are lifting her.    Our practice sessions are hilarious, at least to us. 
  Always want everyone to know why we are doing what we are doing, here is a picture of her cute hobbit feet.   They're all turned in. 
This is the resting position, there are calloused in the outside of her little toe from walking. 
The hammer toes come along with her spastic retraction and her Parkinson's toe walk.  Her foot does not go to 90 degrees. Hasn't for a long time which is why we have worn AFO's, had Botox, and therapy. 

https://www.aofas.org/footcaremd/treatments/Pages/Percutaneous-Achilles-Tendon-Lengthening.aspx

Here is a good link for information.  

What a freaking blessed journey we're on.   And yes, I did shave her feet. 

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