Tuesday, May 4, 2021

Rough Road

Happy Tuesday,

We now live on a world where Liberty can accidentally bite herself hard enough to break skin and cause her entire hand to swell.  This is not the road I would have ever chosen, but it’s the one we’re on.  

The last 24 hours have been rough.  Liberty has bitten her finger so severely that I had to get her checked for a break.  



Yesterday afternoon I got a call while I was in class that Libby was okay, but had gone through a Spastic fit and bitten her finger hard enough to break the skin. Poor Derrick and Mariah for dealing with this scary drama.  (She has bitten herself before as her left hand, index finger, stay very close to her mouth. She has not broken the skin so much, not caused her entire hand and wrist to swell due to the bite trauma.) She has also bitten plastic spoons, straws, and forks in half.  We don’t use plastics any more.)

She had an ugly shower and potty last night and cried through most of the night.  I wrapped and iced her hand.  She spazzed and bit her finger again around 11:00.  I slept with her using my arms as a defensive shield lest she bit herself again.  

Took her to our clinic doctor in Canyon early this morning. Getting X-rays are difficult.  Went through two sets of attempts before we could get a decent shot.  With the spasticity and the gnarly nature of her fingers, it’s hard to see a possible break. Getting her body into the needed position was a challenging yoga class into itself.  It’s easier for us to move and conform that it is to try to get Libby’s body to do so. The Radiologist doesn’t believe she has any breaks.  Thank goodness. 

We left the clinic to get the script for antibiotics as bites of all types are dangerous magnets for infection.  Love our little Canyon clinic.  We did come home with a finger brace which she managed to get off of her finger before we made it home.   

I did ask the Nurse Practitioner for a Liberty size “cone of shame”.  Apparently that’s not appropriate, but it was funny. 



So, here we are.  We lost the day as I couldn’t leave her to go to school this afternoon.  Didn’t help that I ugly cried in front of the nurses and the NP.  This opened a new set of worries for Libby’s health.  

What a crazy day in a life where Liberty has taken me to many crazy days.   We made it home around noon and she napped.  I dozed in between checking on her with her hand wrapped up and iced as if she were a boxer coming out of the ring. 

So, that’s the day in a life with Liberty.  I can curl up and cry or I can admit what an incredibly rough road we’ve been on and understand that all of us are on our rocky road.   

Sometimes I go down an emotional path where I believe God is punishing me or that I’ve done something so terribly wrong that Liberty’s body has gone through so much because of me.  I don’t believe that is how God works. Her physical struggles are not my punishment.  They are just part of journey. 

We’ve all got detours and construction areas that others may not even know about.  The paths we walk are not easy, but they are ours to learn from and grow through.   
But seriously she bit her finger so incredibly hard.   That detour wasn’t  on the map at all! Not sure how this will change our daily care of Liberty, but we will learn our way through it.  No other way but through.  

  Pray for and embrace the people around you.  Pray for and embrace the rocky road your on. Pray for and be embraced by the others around you.   


This life is so unbelievable at times that we really and truly need each other.   And maybe we all need spiritual hard hats to reach our destination safely. 

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