Today was a long day: one handsome Neurologist, 20 injections, a Neurosurgeon, and a group of nurses I really care about made Liberty's double appointments enjoyable. It was the whole facing the status of Liberty's conditions that tend to drag a Mom down.
Today I agreed to something that I once thought I would never want. Agreeing to have a Pump put into my baby's abdomen was not on my acceptable list. It's only been seven years ago this week, October, 2009, since Libby's body quit working and we were stumping the doctors at a hospital in Lubbock- a lifetime ago. Since then our reality has changed drastically and so, we adapt to try to keep up, and maybe someday, get ahead of the torrent that is Liberty's health.
Today, I finalized the schedule to have a pump placed inside Liberty will have a catheter running from the pump to her upper spine. The Pump will allow her to stop taking her muscle relaxer five times a day. Part of her Brian fog could be gone. This will, hopefully, reduce her spasticity and give her some relief. Imagine the stiffness and pain caused by a very long muscles cramp in your leg. Now imagine that tightness without the pin and needle sign of relaxation. Yep, that's spasticity as it was explained to me. To me, understanding her pain feels like drowning.
We also drove to Dallas to visit my Mom in the hospital. Her falls have made her upper arm break worse. The move has been hard for all of us. Praying for all of us to adapt and find happiness in this new adventure.
Today, I choose to not let the assumed prognosis and the deluge of symptoms we aren't getting ahead of stop me from participating in this day. And tomorrow. And the next. I will make sure that Libby keeps going and living life. Period. Now, I need to sleep. Tomorrow, we have new waves to ride.
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