Liberty's surgery was a success. She now has a Baclofen pump in place. She has been without muscle relaxant pills since Monday, November 21 at 4am. She is not really looser, but her movements hint of the benefits we may see. Her back, where the surgeon opened her spine, has been painful and bothersome. Luckily she is healing quickly.
Monday will be five weeks post op and we are out of school. Having truly seen Libby, in all her fragility, I am struggling. I want her with me; my eyes on her. She is excited to start back to school, and I just want her safe and happy. I blame the added stress of this semester; there isand always will be so much to be done.
In just a few short weeks we will be making more major decisions in the day to day life of Liberty. As her diseases progress, we have to choose how her days are spent. Remaining adamant that Libby not sit at home all day, everyday, I can't allow her to become a couch potato. The image of her just sitting there, vegging, breaks my heart. She is still there, in there, and remains Liberty. I don't want to allow her to lose her self.
Although, she can continue to take a few classes at our local junior college which may be determined by how the Baclofen pump affects her. As we go back to Ft. Worth every month to increase the dosage pumping out of her pump, she will be losing, hopefully, her lower body spasticity which may mean that standing to transfer from seats to wheelchair may be complicated. We have her first increase in a week.
Tomorrow is Christmas and it is the first without my Mom near us. Our Happy family will be celebrating Christmas on Tuesday and Wednesday.
Regardless of when our celebration happens, we know how very blessed we are. Pray you all feel loved and cherished throughout this season.
Ileana
Grateful for all who continue to cheer us on. Pray
